Only 85% of patients are either unaware or unsure that participation in a clinical trial was an option at the time of diagnosis.
On November 21st, 1989 my twin sister and I were born in St. Petersburg Russia. We grew up as best friends in the orphanage not knowing we were sisters. We had an incredible bond and we both were adopted at the age five and moved to the United States.
We attend both public and private schools and we both played soccer through our whole lives. The transition to Russia to the United States was of course a challenging experience but also rewarding for us as a whole family.
She shook them off for a long time given the fact that we were both very healthy and lived an active lifestyle. She never realized something was actually wrong with her until on April 20th, 2015, my twin sister Vera was diagnosed with Stage IV Colon Cancer at the age of 25 years old. Her symptoms included: weight loss, bloating, blood in stool and abdominal pain. She had some surgery and began some treatment at that time.
In fact, as mentioned both of our outlets were playing soccer. I remember she played 8 games in one week right after chemo. It was a bit much but she wanted to live a normal life and not let Cancer define who she was. Vera kept also working at the one restaurant she absolutely loved until she couldnāt.
She fought very hard but sadly passed away peacefully on December 29th, 2015, 8 months after at 26 years old.
I have guided myself to try and live the best life I can while Vera watches over me. She would only want the same. Iāve continued to share my story in ways where fundraisers, relay for life and just being a young advocate can help ones self with spreading this awareness. Iāve been on our local news station twice to share my story. It truly is so unique and inspiring.
It addresses our lives together. We lived incredible lives! It starts with our lives in St. Petersburg, Russia, and transitions to the United States. The memoir then tells a story around our lives; adoption through a childrenās and adults perspective, early childhood and adult life, struggles we faced through life, challenges we over came and her Cancer journey. Lastly I share my experience with as a caregiver, and although it is not a happy ending, I find that I heal better when I share my story with others. Especially for Colon Cancer.
Cancer doesnāt discriminate in age, and I want to be a young advocate for others to know that it can happen to anyone.
Nadya Carlson-Bowen
You can find the memoir on Amazon Books here
Half the proceeds of this book also go to the American Cancer Society.
I hope this finds a way of healing to cancer; survivors, caregivers and fighters!ā
Nadya grew up as an orphan in St. Petersburg Russia, along with her twin sister Vera. They grew up as best friends until they found out they were sisters. They then both moved to the US and lived great lives until one day Vera was diagnosed with stage 4, colon cancer at only 25 years old. Vera passed away at 26 years in December 29th, 2015.
Nadya continues to share her unique and powerful story to be a young advocate for others and that because Colon Cancer is increasing in young people, she wants people to be aware. It can be preventable, treated and cured and anyone young or older can get it. "By sharing stories like mine can hopefully help many others" - Nadya
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